Eddie Vedder and Jill Vedder have announced a virtual charity event which will feature a star-studded lineup, and raise money and awareness for sufferers of Epidermolysis Bullosa, a rare skin disease.
The event, entitled Venture Into Cures, will feature performances and information on EB from names such as Chris Hemsworth, Billie Eilish, Judd Apatow, Bradley Cooper, Laura Dern, Adam Sandler and Willie Nelson. The hour-long show will also play host to the Pearl Jam frontman debuting two new solo songs: one called Matter Of Time, and a new version of his song Say Hi. the event has been put together with the Epidermolysis Bullosa Research Partnership (EBRP).
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On Wednesday, November 18th at 8pm ET, please join Eddie and Jill Vedder for the virtual Heal EB event, Venture Into Cures. The show will include memorable and moving moments, including the premiere of new songs by Eddie Vedder, inspired by EB families: the debut of “Matter of Time” and a new version of “Say Hi.” Venture Into Cures will stream globally for free at the link in bio, on Pearl Jam’s website as well as the Pearl Jam and Eddie Vedder YouTube and Facebook pages.
Jill Vedder said of the event: “Ed and I are incredibly grateful to everyone joining us for Venture Into Cures. Every day kids with EB and their families face astonishing challenges. This event will give people a glimpse into their world. EBRP’s mission is to find a cure for EB, and this event will help bring us one step closer to making that mission a reality by adding momentum to the work being done.”
Michael Hund, CEO of EBRP, added: “Our team is dedicated to accelerating life-saving treatments for patients and families battling EB, and Venture Into Cures offers us the opportunity to involve more people in our mission than ever before. Together, we will heal EB, and in the process, pioneer an innovative model for all rare diseases.”
The event will take place at 8 PM EST on 18 November. Find out more at ventureintocures.org.
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