The Venture Into Cures event was spearheaded by Vedder and his wife Jill to raise awareness about the condition and support affected families and individuals.
Vedder’s new material comprised a new song Matter Of Time (above), as well as a new rendition of Say Hi (below), a song he penned for a child, Eli Meyer, suffering from EB.
The Vedders are supporters of EB Research Partnership (EBRP), an organisation dedicated to finding a cure for the skin condition.
Speaking on the event, Jill said: “Ed and I are incredibly grateful to everyone joining us for Venture Into Cures. Every day, kids with EB and their families face astonishing challenges. This event will give people a glimpse into their world.”
“EBRP’s mission is to find a cure for EB, and this event will help bring us one step closer to making that mission a reality by adding momentum to the work being done.”
Michael Hund, CEO of EBRP, added: “Our team is dedicated to accelerating life-saving treatments for patients and families battling EB, and Venture Into Cures offers us the opportunity to involve more people in our mission than ever before. Together, we will heal EB, and in the process, pioneer an innovative model for all rare diseases.”
Learn more at ventureintocures.org
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